Reports and Publications

All publications related to the study will be posted here - please check back for updates.

The first two papers from the study are now available as preprints prior to peer review:

Place, cause and expectedness of death and relationship to the deceased are associated with poorer experiences of end-of-life care and challenges in early bereavement: Risk factors from an online survey of people bereaved during the COVID-19 pandemic

L. E. Selman, D.J.J.Farnell, M. Longo, S. Godd, K. Seddon, A. Torrens-Burton, C.R. Mayland, D. Wakefield, B. Johnston, A. Byrne, E. Harrop.

doi: https://doi.org/10.1101/2021.09.09.21263341

Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic

E. Harrop, S. Goss, D. Farnell, M. Longo, A. Byrne, K. Barawi, A. Torrens-Burton, A. Nelson, K. Seddon, L. Machin, E. Sutton, A. Roulston, A. Finucane, A. Penny, K.V. Smith, S. Sivell, L.E. Selman. Palliat Med. 35(10), 1985-1997 (2021). doi: 10.1177/02692163211043372.

Parental perspectives on the grief and support needs of children and young people bereaved during the Covid-19 pandemic: Qualitative findings from a national survey.

E. Harrop, S. Goss, M. Longo, K. Seddon, A. Torrens-Burton, E. Sutton, D.J.J. Farnell, A. Penny, A. Nelson, A. Byrne, L.E. Selman
doi: https://doi.org/10.1101/2021.12.06.21267238

“It was brutal. It still is”: A qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys
A. Torrens-Burton, S. Goss, E. Sutton, K. Barawi, M. Longo, K. Seddon, E. Carduff, D.J.J. Farnell, A. Nelson, A. Byrne, R. Phillips, L.E. Selman, E. Harrop
doi: https://doi.org/10.1101/2021.12.06.21267354

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Click here to access the interim report of data from the bereavement survey: "Supporting people bereaved during COVID-19: Study Report 1, 27 November 2020"

Click here to access another report of data from the bereavement survey in Aril 2021: "Study report 1: Grief experience and support needs of people bereaved during the Covid-19 pandemic: Findings from the first 532 people who responded to the survey"